Comments for Autoimmune Polyendocrinopathy Candidiasis Ectodermal Dystrophy http://apeced.wordpress.com Fri, 20 Jun 2008 01:35:39 +0000 http://wordpress.com/ hourly 1 Comment on James and me by Marco http://apeced.wordpress.com/jimney-and-me/#comment-17 Marco Fri, 20 Jun 2008 01:35:39 +0000 http://jimneydandme.wordpress.com/jimney-and-me/#comment-17 I wish you all the best I wish you all the best

]]> Comment on James’s APECED Story by Marco http://apeced.wordpress.com/james-story/#comment-11 Marco Fri, 20 Jun 2008 01:30:52 +0000 http://jimneydandme.wordpress.com/james-story/#comment-11 Hi Can I know on what kind of medication your on, I too have been diagnosed with apeced when I was little. Hi

Can I know on what kind of medication your on, I too have been diagnosed with apeced when I was little.

]]> Comment on James’s APECED Story by URIEL http://apeced.wordpress.com/james-story/#comment-12 URIEL Mon, 16 Jun 2008 04:01:47 +0000 http://jimneydandme.wordpress.com/james-story/#comment-12 I found this page while I investigate te APECED syndrome. Thanks for the links to the articles. I wish you a lot of happiness and health. Uriel CF. Allergy & Immunology. México City. I found this page while I investigate te APECED syndrome. Thanks for the links to the articles. I wish you a lot of happiness and health.
Uriel CF. Allergy & Immunology. México City.

]]> Comment on James’s APECED Story by Tammy http://apeced.wordpress.com/james-story/#comment-10 Tammy Wed, 07 May 2008 02:05:19 +0000 http://jimneydandme.wordpress.com/james-story/#comment-10 I found your story while researching hypoparathyroidism for school. I graduate from college in a few days as a registered nurse. I spent a lot of time studying diseases, but I now feel more empowered with your story to stop seeing the diseases and see the patient. I never realized how young some people can be and not have a chance to be healthy and free from symptoms of diseases that people don't normally have to face until adulthood. I will hold your story in my heart and never let my heart turn to stone. I wish you and your family health and happiness. Take care! I found your story while researching hypoparathyroidism for school. I graduate from college in a few days as a registered nurse. I spent a lot of time studying diseases, but I now feel more empowered with your story to stop seeing the diseases and see the patient. I never realized how young some people can be and not have a chance to be healthy and free from symptoms of diseases that people don’t normally have to face until adulthood. I will hold your story in my heart and never let my heart turn to stone. I wish you and your family health and happiness. Take care!

]]> Comment on James’s APECED Story by Donna Baggett http://apeced.wordpress.com/james-story/#comment-9 Donna Baggett Wed, 13 Feb 2008 01:12:42 +0000 http://jimneydandme.wordpress.com/james-story/#comment-9 I love to read your story I have a 6 year old little boy who has apeced.Thank you. I love to read your story I have a 6 year old little boy who has apeced.Thank you.

]]> Comment on James’s APECED Story by bodgy http://apeced.wordpress.com/james-story/#comment-8 bodgy Sat, 19 Jan 2008 10:38:39 +0000 http://jimneydandme.wordpress.com/james-story/#comment-8 Hey Jimmy and Liz, just wanted you to know you're not alone. My husband and I have type 1 diabetes, Addison's, hypothyroidism and I don't know why only I do, but I have candidiasis. Some days having all this is just miserable. People just don't get it why you might be tired early or only work part time, or just plain feel super funky for no reason at all. Just curious if there is anything Jimmy D can link the start of his illness to(like maybe a reason for the hypoparathyroidism?) My husband says his first autimmune illness was due to a smallpox vaccine, my type 1 diabetes showed up after have mercury fillings placed in my mouth. I know it was almost comforting to read his story, thanks for writing about it. It sound like you have a good understanding of what he feels by your descriptions. Also, my husband is 59 and has had addisons for 32 yrs, hypothyroidism for about 25 yrs and type 1 diabetes about 4 yrs. He's doing remarkable considering all this. The diabetes diagnosis about did him in though. He has been more challenged since having this. Keeping everything in balance is an incredible feat, as I'm sure you know. I' m 32. Mine started as type 1 diabetes 20 yrs ago, then thyroid, then most recently adrenals and candidiasis. No one has ever checked for hypoparathyroidism, but I did have strange calcium in my blood readings but the doc didn't persue it at the time. Hmmm... now I'm intrigued. Anyway, good luck to you both. Hey Jimmy and Liz, just wanted you to know you’re not alone. My husband and I have type 1 diabetes, Addison’s, hypothyroidism and I don’t know why only I do, but I have candidiasis. Some days having all this is just miserable. People just don’t get it why you might be tired early or only work part time, or just plain feel super funky for no reason at all. Just curious if there is anything Jimmy D can link the start of his illness to(like maybe a reason for the hypoparathyroidism?) My husband says his first autimmune illness was due to a smallpox vaccine, my type 1 diabetes showed up after have mercury fillings placed in my mouth. I know it was almost comforting to read his story, thanks for writing about it. It sound like you have a good understanding of what he feels by your descriptions. Also, my husband is 59 and has had addisons for 32 yrs, hypothyroidism for about 25 yrs and type 1 diabetes about 4 yrs. He’s doing remarkable considering all this. The diabetes diagnosis about did him in though. He has been more challenged since having this. Keeping everything in balance is an incredible feat, as I’m sure you know. I’ m 32. Mine started as type 1 diabetes 20 yrs ago, then thyroid, then most recently adrenals and candidiasis. No one has ever checked for hypoparathyroidism, but I did have strange calcium in my blood readings but the doc didn’t persue it at the time. Hmmm… now I’m intrigued. Anyway, good luck to you both.

]]> Comment on James and me by Todd Talarico http://apeced.wordpress.com/jimney-and-me/#comment-16 Todd Talarico Mon, 03 Dec 2007 01:14:50 +0000 http://jimneydandme.wordpress.com/jimney-and-me/#comment-16 Hi Kate, Great story about you and James...I hope my daughter finds someone someday as wonderful as you. My daughter has APECED, known in the states as APS Type 1. She's 12 and diagnosed just 2 years ago. Went through hell till we knew what we were dealing with. Since then we have a website...APSTYPE1.ORG and you can find out about Gaby and we have a research grant we are working on with NORD (National Organization of Rare Diseases) to hopefully find a cure. Keep doing the wonderful work your doing and best of luck to the both of you...you are an inspiration to use. Please keep in touch. Thanks. Hi Kate, Great story about you and James…I hope my daughter finds someone someday as wonderful as you. My daughter has APECED, known in the states as APS Type 1. She’s 12 and diagnosed just 2 years ago. Went through hell till we knew what we were dealing with. Since then we have a website…APSTYPE1.ORG and you can find out about Gaby and we have a research grant we are working on with NORD (National Organization of Rare Diseases) to hopefully find a cure. Keep doing the wonderful work your doing and best of luck to the both of you…you are an inspiration to use. Please keep in touch. Thanks.

]]> Comment on APECED? by James And The Giant (Hearted) Pooch/ Type 1 With A Twist « Why did the insulin die in my pancreas? http://apeced.wordpress.com#comment-13 James And The Giant (Hearted) Pooch/ Type 1 With A Twist « Why did the insulin die in my pancreas? Sat, 13 Oct 2007 08:12:43 +0000 http://jimneydandme.wordpress.com/apeced/#comment-13 [...] and speaking of rare, James has an extremely rare autoimmune condition known as APECED-an acronym for Autoimmune Polyendocrinopathy Candidiasis Ectodermal [...] [...] and speaking of rare, James has an extremely rare autoimmune condition known as APECED-an acronym for Autoimmune Polyendocrinopathy Candidiasis Ectodermal [...]

]]> Comment on James and me by Kate http://apeced.wordpress.com/jimney-and-me/#comment-15 Kate Sun, 07 Oct 2007 05:39:05 +0000 http://jimneydandme.wordpress.com/jimney-and-me/#comment-15 I knew Penrith wasn't spelt correctly..apologies!! I knew Penrith wasn’t spelt correctly..apologies!!

]]> Comment on James and me by Kate http://apeced.wordpress.com/jimney-and-me/#comment-14 Kate Sun, 07 Oct 2007 05:37:31 +0000 http://jimneydandme.wordpress.com/jimney-and-me/#comment-14 What a romantic tale! I had no idea about the Penerith part!! Seriously, you are fantastic together. Kismet was responsible for you hurting your hand, Imagine..if you hadn't hurt it, the Penerith journey would never have happened, and things could have been entirely different. I', so glad they weren't though. What a romantic tale!

I had no idea about the Penerith part!! Seriously, you are fantastic together. Kismet was responsible for you hurting your hand, Imagine..if you hadn’t hurt it, the Penerith journey would never have happened, and things could have been entirely different. I’, so glad they weren’t though.

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